Return of Research Results

data(rorr)

Format

A data frame with 23 rows and 47 variables

Details

A dataset with variables as follows:

  • RECIPPT N NA 7a. Were the research results returned to the Participant?

  • RECIPFAM N NA 7b. Were the research results returned to a Family Member?

  • RECIPFR N NA 7c. Were the research results returned to a Friend?

  • RECIPSP N NA 7d. Were the research results returned to a Study Partner?

  • RECIPCLIN N NA 7e. Were the research results returned to a Treating Clinician?

  • RECIPOTH N NA 7f. Were the research results returned to another individual (Other, Specify)

  • RID N Participant roster ID

  • SITEID N Site ID

  • VISCODE T Visit code

  • USERDATE S Date record created

  • USERDATE2 S Date record last updated

  • RECNO N

  • TYPE N 1. What type of research results were disclosed?

  • TYPEOTH T If Other, please specify:

  • REQUESTED N 2. Who requested the return of research results?

  • REQUESTOTH T If Other, please specify:

  • REASON T 3. What was the reason for returning research results? (check all that apply)

  • REASONOTH T If Other, please specify:

  • CONSENT N 4. Who gave informed consent for the decision to return research results?

  • CONSENTOTH T If Other, please specify:

  • IRBPLAN N 5. Was the plan to return research results presented to your institution's IRB?

  • IRBINFO T a) How was this information presented to your IRB (email, in-person meeting, etc.)?

  • IRBPROTO T b) What was the protocol for returning results that you presented?

  • WAIVER N c) Was a waiver obtained?

  • EXCEPOBT N d) Was an exception obtained?

  • COGSTATUS N 6. What was the participant's cognitive status at the time these results were returned?

  • RECIPIENT T 7. Who were the research results returned to? (check all that apply)

  • RECIPIENTO T If Other, please specify:

  • RETURNPOS T Position: <!--8. Who returned the results?-->

  • RETURNMETH N How were results returned (verbally or in writing)?

  • RETURNTIME T What was the timeframe for returning results (from request to date of disclosure)?

  • RETURNROLE N 9. What is this person's role in ADNI?

  • RTNROLEOTH T If Other, please specify:

  • AMYLRESNM T Name: <!--10. If amyloid imaging results were returned, please indicate who read the scan and the individual's qualifications for interpreting amyloid imaging:-->

  • AMLYLRESQU T Qualifications (e.g., degrees, specialty area): <!--10. If amyloid imaging results were returned, please indicate who read the scan and the individual's qualifications for interpreting amyloid imaging:-->

  • AMLYRESTR T Training (e.g., specific training in interpretation of amyloid imaging, such as Amyvid training course): <!--10. If amyloid imaging results were returned, please indicate who read the scan and the individual's qualifications for interpreting amyloid imaging:-->

  • AMLYRESEXP T Experience: <!--10. If amyloid imaging results were returned, please indicate who read the scan and the individual's qualifications for interpreting amyloid imaging:-->

  • PTRESPONSE T Participant: <!--11. How did the recipient respond to the information provided?-->

  • FMRESPONSE T Family member: <!--11. How did the recipient respond to the information provided?-->

  • FRRESPONSE T Friend: <!--11. How did the recipient respond to the information provided?-->

  • SPRESPONSE T Study partner: <!--11. How did the recipient respond to the information provided?-->

  • CLRESPONSE T Treating clinician: <!--11. How did the recipient respond to the information provided?-->

  • OTRESPONSE T Other recipient: <!--11. How did the recipient respond to the information provided?-->

  • PREDISC T Pre-disclosure: <!--12. What kind of pre- and post-disclosure support and monitoring was provided to the participant and his or her family?-->

  • POSTDISC T Post-disclosure: <!--12. What kind of pre- and post-disclosure support and monitoring was provided to the participant and his or her family?-->

Examples