rorr.RdReturn of Research Results
data(rorr)
A data frame with 34 rows and 47 variables
A dataset with variables as follows:
RECIPPT N NA 7a. Were the research results returned to the Participant?
RECIPFAM N NA 7b. Were the research results returned to a Family Member?
RECIPFR N NA 7c. Were the research results returned to a Friend?
RECIPSP N NA 7d. Were the research results returned to a Study Partner?
RECIPCLIN N NA 7e. Were the research results returned to a Treating Clinician?
RECIPOTH N NA 7f. Were the research results returned to another individual (Other, Specify)
RID N Participant roster ID
SITEID N Site ID
VISCODE T Visit code
USERDATE S Date record created
USERDATE2 S Date record last updated
RECNO N
TYPE N 1. What type of research results were disclosed?
TYPEOTH T If Other, please specify:
REQUESTED N 2. Who requested the return of research results?
REQUESTOTH T If Other, please specify:
REASON T 3. What was the reason for returning research results? (check all that apply)
REASONOTH T If Other, please specify:
CONSENT N 4. Who gave informed consent for the decision to return research results?
CONSENTOTH T If Other, please specify:
IRBPLAN N 5. Was the plan to return research results presented to your institution's IRB?
IRBINFO T a) How was this information presented to your IRB (email, in-person meeting, etc.)?
IRBPROTO T b) What was the protocol for returning results that you presented?
WAIVER N c) Was a waiver obtained?
EXCEPOBT N d) Was an exception obtained?
COGSTATUS N 6. What was the participant's cognitive status at the time these results were returned?
RECIPIENT T 7. Who were the research results returned to? (check all that apply)
RECIPIENTO T If Other, please specify:
RETURNPOS T Position: <!--8. Who returned the results?-->
RETURNMETH N How were results returned (verbally or in writing)?
RETURNTIME T What was the timeframe for returning results (from request to date of disclosure)?
RETURNROLE N 9. What is this person's role in ADNI?
RTNROLEOTH T If Other, please specify:
AMYLRESNM T Name: <!--10. If amyloid imaging results were returned, please indicate who read the scan and the individual's qualifications for interpreting amyloid imaging:-->
AMLYLRESQU T Qualifications (e.g., degrees, specialty area): <!--10. If amyloid imaging results were returned, please indicate who read the scan and the individual's qualifications for interpreting amyloid imaging:-->
AMLYRESTR T Training (e.g., specific training in interpretation of amyloid imaging, such as Amyvid training course): <!--10. If amyloid imaging results were returned, please indicate who read the scan and the individual's qualifications for interpreting amyloid imaging:-->
AMLYRESEXP T Experience: <!--10. If amyloid imaging results were returned, please indicate who read the scan and the individual's qualifications for interpreting amyloid imaging:-->
PTRESPONSE T Participant: <!--11. How did the recipient respond to the information provided?-->
FMRESPONSE T Family member: <!--11. How did the recipient respond to the information provided?-->
FRRESPONSE T Friend: <!--11. How did the recipient respond to the information provided?-->
SPRESPONSE T Study partner: <!--11. How did the recipient respond to the information provided?-->
CLRESPONSE T Treating clinician: <!--11. How did the recipient respond to the information provided?-->
OTRESPONSE T Other recipient: <!--11. How did the recipient respond to the information provided?-->
PREDISC T Pre-disclosure: <!--12. What kind of pre- and post-disclosure support and monitoring was provided to the participant and his or her family?-->
POSTDISC T Post-disclosure: <!--12. What kind of pre- and post-disclosure support and monitoring was provided to the participant and his or her family?-->
if (FALSE) { describe(rorr) }